Last week Ruby had another seizure. But this wasn’t a “usual” one, not that hers are ever usual. The type of seizures Ruby has are called Status Epilepticus (SE) because they go on and on lasting way past “normal”. The one in April lasted a nightmare two hours. But this last week her seizure was different. At the end of the seizure Ruby did something she has never done before and it was terrifying. Trust me.
Anyway, as her seizure seemed to be ending, I ran to our closet to throw some things in my night bag knowing I would be heading to the hospital as soon as the ambulance arrived.
As I came back to Ruby, I paused and noticed her siblings, all seven of them, gathered around her in a breathtaking display of unconditional love. Of course her daddy was right beside her too.
I had the morning “off” and Dw had been dressing Ruby after her bath when her seizure began. He yelled loudly, “She’s having a seizure.” The kids were all doing their school at the kitchen table.
Without another word, each sibling, had sprung into action. In fact they’ve never been asked to do anything or to come and sit with us as we tend to Ruby. They do it out of their deep love, commitment and adoration for her.
True love is Nehemiah immediately starting to time the seizure. True love is Isaiah running to the kitchen cupboard for our mini oximeter and running back to our bedroom, slipping the monitor on her for pulse and oxygen stats while watching the stats and telling us what they are doing.
True love is Elizabeth kneeling beside Ruby tenderly whispering how much we love her while wiping her face. True love is Jubilee and Elijah all surrounding her and praying. True love is John not even taking the time to position his walker but rather dropping to the floor from his chair at the table and quickly dragging his body to our room. True love is Birdie right there in the thick of it “talking” to her Ree as she seizes.
What does true love look like? This. This is true love. This is true love for others. This is truly love – day in and day out – even when it isn’t “fun” but actually when it’s even scary.
This is true love. I’m forever grateful we get to. And that Ruby knows true unconditional love.