First of all, Dw and I want to thank every one of you for praying for Ruby. This has been a season we definitely didn’t anticipate and in the midst of it, there has been such comfort in knowing people all over the world are praying for our precious miracle-girl. Thank you for all who have reached out – we have needed it.
So the bottom line: On the last day of her hospital stay the neurologist told me in so many words “MRIs are imperfect and although we were unable to see it on the MRI, this is a stroke as well as a seizure.” Her neurosurgeon had warned us that Ruby’s head, being so complex, could hide a stroke. And truthfully, from day one, I thought, “Ruby has had a stroke.”
Initially there was talk of moving her (and mommy) to inpatient rehab where Ruby could have intense therapy each day. But she was not wanting to be awake really very much and that concerned me. I explained that I felt that the best therapy for now would be to bring her home and surround her with her favorite peeps.
The transition to home was “whew”! Even though I’ve been a mom now for almost 38 years I have felt totally unprepared for feeds through a feeding tube and the feeding machine itself. Two machines they brought were broke when I got them which definitely didn’t help me feel confidant. Then needing to place a new feeding tube in when she accidentally pulled it out in the middle of the second night home in bed beside us…ugh. So very grateful for our Savannah and our friend, Jordan, who came to my rescue and put a new feeding tube in.
Truthfully, so many adjustments to a mama with PTSD from the day it all happened – it was such a nightmare – I knew something really awful was going on! This mama has been grieving big time. After the bazillions miracles the Lord had done for Ruby, I truly felt punched in the gut.
I’m forever grateful for my precious friend Missy who reminded me while I “sobbed on her shoulder”, “God is not done writing Ruby’s story.” Best words I could have ever heard and I have reminded myself of them over and over and over. God’s definitely not done writing Ruby’s story.
As for Ruby, coming home was just what our girl needed! She’s awake now much more of the day. And it is a beautiful encouragement to randomly see one of her brothers or sisters taking her paralyzed arm or hand or leg and stretching it out, lifting it up, exercising it all while tenderly talking to her.
We are so grateful that our spunky, joyful little gift is slowly emerging, once again. Oh how we’ve missed her!! Her “coming back” is just the very best medicine for all of us.
This morning she was the most awake she’s been since coming home and I was able to snag a few pictures of our treasure-girl with her sweet, joyful spirit oozing from her soul.
We play worship much of the day and intense in-home therapies will start on Friday.
Lastly, if Ruby should cross your mind, please pray that her left side will be completely healed so she can race around in her wheelchair again on her brand new Make-A-Wish backyard cement pad. Also that she would be able to eat all her meals again (she has always loved to eat what we eat!) so the Ng tube could be removed permanently. Thank you sweet friends. xo