A few weeks I posted a video of Ruby zipping around herself (pre-stroke) on her new Make-A-Wish cement pad, intentionally rolling into the sprinkler while squealing with delight. Many commented that they had no idea she could do that. Oh friends! She is such a hoot and her joy is contagious and yes, she had accomplished so much mobility (pre-stroke) it was beyond miraculous!
Since I have not shared all Ruby’s accomplishments, the other day something happened that was so spectacular I just had to tell you all.
So…we were attending a wonderful church that was 38 miles (one way from our home) and I had bragged on that church many times! Highlands has a culture of celebrating special needs and is such a beautiful place filled with precious people and they loved us so generously. However being truly involved was nearly impossible with such a drive, our large family and complicated special needs. Yet our kids really wanted to be involved and serve. Prayerfully, we made the painful decision to attend a church closer to our home and we were able to find a wonderful church just 4 miles away and the kids are getting involved.
On our second Sunday the pastor commented that he wanted to find a nurse to walk Ruby so Dw and I could attend service together. In churches without a ministry to special needs Dw and I take turns each Sunday walking outside with her.
Super fun fact: The very second we enter the foyer of the church Ruby starts squealing and I mean squealing loudly! Her enthusiasm is undeniable and the crowd of people all turn, smiling and grinning, “Ruby is in the house!” Everyone at our church loves her joy!
Anyway, there is a precious woman who happens to be a nurse and immediately told our pastor that she would love to walk with Ruby while Dw and I attend service together. The first Sunday Ruby met her, Ruby leaned her head against her, no doubt telling her, “I love you already and I am pretty sure you and I are going to be great friends!” Ruby rarely leans her head against any of us, let alone someone she has just met.
So Ruby and her friend Mary have become good buddies. It’s obvious that Mary loves Ruby and it makes this mama and daddy so very grateful. First, our church rose to meet the need and a tenderhearted nurse responded without hesitation. Oh that people would understand that when you celebrate Ruby and love on her it’s like you’ve “done it” to Jesus. Matthew 25:40
Anyway, after service two weeks ago Mary excitedly told us the following story….she said that she and Ruby had been walking outside for a bit. Feeling ready for some air-conditioning they came into the foyer. There was a woman there who came right up to them. The woman told Mary and Ruby this, “I have never been here before but came with my friend. She’s inside listening to the sermon and she is in a desperate situation. I need to be able to counsel her wisely, would you please pray with me?”
Mary said she has never been super comfortable praying with people and after the woman asked her to pray Mary hesitantly questioned, “You want me to pray with you?” Mary told us that it was clear that Ruby was paying full attention and sensed Mary’s hesitation and Ruby immediately reached up and took Mary’s hand and held it firmly. Then Ruby closed her eyes tightly, quietly waiting for Mary to pray. Mary said that Ruby’s encouragement gave her the courage she needed and so she prayed with the woman. Mary said Ruby held her hand the entire time and kept her eyes shut throughout all of her prayer.
Can you imagine? The 13 month old 6 pound fragile little girl, who medical professionals thought would never do anything – reached up and took Mary’s hand and closed her eyes tightly clearly telling Mary, “I’m with you, I’ll pray with you, come on Mary – let’s just talk to Jesus.”
And some people think Ruby doesn’t talk! Smf.
Only our faithful God!
As I was finishing up typing this Ruby has been patiently sitting here waiting for me. She has been chatting away each time I ask her about the fun things we are going to do for her birthday (today!) so I took a video. Fresh off the press…(I told you she talks all day long!)
And yes, today is Ruby’s 11th birthday! She is officially a pre-teen. Please leave a note for her…and I will read her each of them! She certainly deserves to be celebrated – our miracle baby girl.
PS The Ng tube had to go back in. Surgery for a G-Tube is set for mid-August.