We’re down at Children’s and this sweet chica is heading into the OR in a few minutes.
I think this is the most difficult part of being a mom of many with medical needs. It’s just so hard. I’m thankful for God’s grace, but it doesn’t mean it’s fun or easy.
Because of Jubilee’s needs, surgery is necessitated today. Yesterday she had a sedated MRI in preparation for the surgery. We have found an amazing anesthesiologist who allows me to go in with each of the kids until they are fully asleep. I joked with him yesterday that I’m going to have to put him on retainer. He’s been with us as several have had their surgeries and I’ve now actually changed surgery dates so we are sure to have him!! He’s an amazing answer to prayer!
Anyway, Jubilee has had so many surgeries, I’ve actually lost count. She’s been a trooper, but I have to prepare her for weeks ahead of time or I’d literally have to carry her
kicking, flailing and screaming at the top of her lungs to the car just to go to the hospital. Then we’d probably have to bring the anesthesiologist out to the car to get her into the building.
Soooo, deciding to pass on that lively alternative, we’ve found in our family it just works best to be completely honest about it all…in this case, to prepare her for what’s ahead, including that the recovery for this particular surgery is slow and rumor has it the recovery is painful for months. Her understanding is limited, so we’ve gone over and over and over what’s going to happen and why. She still doesn’t quite understand, but she’s figured out she’s not a fan of this idea.
At the moment she’s sitting beside me in her hospital gown and keeps turning to me with those big beautiful, finally trusting eyes, asking in her dreading-every-bit-of-it soft voice, “Why mom? (pause) Why?”
Ugh. It’s killin’ me.
Would you pray with me that God will minister to her sweet soul, that the surgeon would have skilled hands and that the recovery would be unbelievably quick and painless?
The surgery should last about 3 hours.
On a bright note…I asked her what sounded yummy to eat at the “last hour”…so late last night she sat at the island surrounded by all her sibs, who love her so much, eating her own gigantic plate of spaghetti! Everyone’s mouth was watering…I started making it about 8:30…and we all talked and laughed and had a blast until she had finished the last drop.
Now it’s go-time…thank you friends in advance for praying for her. She’s just as delightful as her beautiful pictures look. If you knew her up close, you would adore her!!